First let me thank you all for the kind words that you have posted as well as the emails. They are appreciated. It is nice to know Paula touched so many lives.
We are still at UCLA most likely until Monday when we hope to move Paula to a continuing care facility close to home, her garden and her dogs. Today she had several seizures so the doctors have increased the anti seizure medications which appear to have helped. Late this afternoon a feeding tube was inserted without any complications.
If you wish to visit (it is OK to do so) she is in the Ronald Reagan Medical Center at UCLA in the Neuroscience/Stroke Unit room 6621. She has a private nurse with her 24/7 so there is always someone there.
Thank you all again for your support.
Saturday, June 6, 2009
Friday, June 5, 2009
June 5, 2009 2:40 PM
All,
This will probably be the second hardest post I will have to make, the hardest will come at a later date. The doctors have confirmed that Paula has classic Creutzfeldt–Jakob disease, a brain disease that is incurable. We are in the process of making arrangements to move my best friend of 36 years to a continuing care/hospice facility. The doctors are estimating that she will remain there for 3 to 6 months before she physically moves on to the great garden/skating rink in the next world.
I want to personally thank all of you for the love and support you have shown us during this very difficult time. It has been greatly appreciated. As someone said to me yesterday, no matter how this turns out Paula is going to be OK and I know that to be true.
Jeff
This will probably be the second hardest post I will have to make, the hardest will come at a later date. The doctors have confirmed that Paula has classic Creutzfeldt–Jakob disease, a brain disease that is incurable. We are in the process of making arrangements to move my best friend of 36 years to a continuing care/hospice facility. The doctors are estimating that she will remain there for 3 to 6 months before she physically moves on to the great garden/skating rink in the next world.
I want to personally thank all of you for the love and support you have shown us during this very difficult time. It has been greatly appreciated. As someone said to me yesterday, no matter how this turns out Paula is going to be OK and I know that to be true.
Jeff
Thursday, June 4, 2009
June 4, 2009 - 9:00 AM
Paula arrived at UCLA yesterday evening at about 5. She was immediately examined by the neurologist on staff and was then examined again later in the evening. She slept through the night and is resting comfortably at the moment. We are scheduled for a new spinal tap and another MRI sometime today. She is currently nonresponsive. Her dogs are watching over her from their picture taped to the side of the bed. I have also hired a group of private nurses to be with her 24/7.
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